Are Researchers Ever Obligated to Provide Individual Research Findings to Non-participant Third Parties?

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Allan Loup, JD
Regulatory Affairs Specialist, University of Michigan Medical School
Recorded January 15, 2014

A consensus is emerging that, in some circumstances, researchers have obligations to return individual research results to research participants. Recent methodological advances in genetics research suggest that researchers will increasingly uncover potentially pathogenic, actionable information relevant to individuals, such as family members of participants, who never involved themselves in research. Are investigators ever obligated to provide findings to these non-participant third parties? What could explain such obligations?

The slides and bibliography for this presentation are available on our website.

This lecture was part of the 2013-2014 Bioethics Brownbag & Webinar Series, presented by the Center for Ethics.
Originally recorded in Adobe Connect Pro.

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Are Researchers Ever Obligated to Provide Individual Research Findings to Non-participant Third Parties?

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